Moanments & Memories

A few days ago, I had the opportunity to catch up with Kerry who is a popular UK Disability Campaigner and Activist. Since establishing her social media platforms in 2016, Kerry has advocated on behalf of others for fair access to toilets, in public places through the ' Changing Places ' campaign, advises on traveling with a disability , the promotion of better mental health  and championing for better disability access .  Does this lady ever stop?!  Kerry's multiple social media outlets provide an insight into what it's like to live with a muscle-wasting condition called FHL1 Gene Mutation Muscular Dystrophy. Since her diagnosis at the age of 24 Kerry has established her sought after  YouTube ,  Instagram  and  Facebook   platforms and won awards along the way! A self confessed  Aloe Vera addict, Kerry is someone who is passionate about supporting others and is a connoisseur for living in the moment. Hi Kerry! Thanks for taking the tim...

  A few weeks ago, I had the opportunity to catch up with Amanda who is an aspiring poet. Amanda's poetry publications provide an insight into what it's like to live with Fibromyalgia and Chronic Fatigue Syndrome. I know that when you live with a chronic illness, you can feel frustrated, alone and thoroughly overwhelmed by trying to balance everyday life with copious amount of pain and debilitating fatigue .  I discovered Amanda's works on Instagram and was keen to talk to the person behind the insightful poetry. Hi Amanda! Thanks for taking the time out to take part in the interview. I have been reading your poetry for the past few months and wanted to know what inspired you to start writing? I first started writing poetry when I became ill with Fibromyalgia 14 years ago. I found it really difficult to cope with the way I was feeling, both physically and mentally, and the changes my illness brought into my life. Writing was a way of expressing myself and getting my ...

  Recently I had a very honest conversation with a Health Care Professional and even though I wasn't ready to admit that I needed some support for me to keep living independently, the conversation planted a seed of truth. I then went in search for the aids which would help me to manage my day-to-day symptoms more effectively, as well as some being supplied by the local NHS Trust. When my search first started by punching 'Disability Aids' into Google I was vastly overwhelmed by the sheer number of aids that came up. It was then that I stumbled onto Nicola's vlog  which describes viewers favourite aids to use! If you are newly diagnosed, or a veteran of Fibro, and are a little lost by where to begin with Fibro take a look at Nicola's YouTube channel. It will be one of the best things you can do for yourself in order to educate yourself. Remember knowledge is power! As said, the range of equipment and aids out there is huge and what maybe useful to me, may not suit you...